The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME or ME/CFS) and are campaigning for funding for biomedical research to provide treatments and cures for ME.
The alliance was formed in 2008 by national charities and organisations in Europe.
The Alliance now has representatives from Belgium, Czech Republic, Denmark, Finland, France, Germany, Holland, Iceland, Ireland, Italy, Norway, Spain, Sweden, Switzerland and the UK.
ME/CFS is a debilitating neurological illness classified as such by the World Health Organisation under ICD-10 G93.3.
Our aim is to campaign for appropriate funding of biomedical research into ME/CFS to establish an understanding of the aetiology, pathogenesis and epidemiology of the disease. This should lead to the development of treatments to cure or alleviate the effects of the illness.
The objectives of the European ME Alliance is to provide a correct and consistent view of myalgic encephalomyelitis (ME/CFS) for healthcare organisations, healthcare professionals, government organisations, the media and patients and the public.
Our web site will consist of accurate descriptions of the illness and details of research which has or is taking place.
The member groups in the alliance will be working together to promote awareness of ME/CFS and will work closely with organisations and researchers who are interested in finding treatments and cures for ME/CFS.
The members of the European ME Alliance have agreed the following -
- That members of the European ME Alliance endorse the principles of the 2003 Canadian Consensus Document for Diagnosis and Treatment for ME/CFS.
- That members of the European ME Alliance endorse the principles of the 2006 paediatric definition from Dr Leonard Jason et al.
- That members of the European ME Alliance promote the fact that ME (myalgic encephalomyelitis) is a neurological illness in the World Health Organisation’s International Classification of Diseases.
- That members of the European ME Alliance understand the necessity to use the composite term ME/CFS at the moment for ease of reference/standardisation.
- That members of the European ME Alliance support biomedical research into establishing sub groups of ME/CFS which will lead to treatments and cures for this illness.
- That the European ME Alliance has, as an objective, the preparation and promotion of a common set of documentation, in all languages, for Alliance use that is supplemented by local information.
Members of EMEA are shown in this sliding representation. Click on the country of interest to read more.
The constitution of the European ME Alliance is available here.
All members of EMEA have agreed to this constitution.
United Nations Convention on Rights of Persons with Disabilities (UNCRPD)
All members of the European ME Alliance endorse the UN Convention on the Rights of Persons with Disabilities.
This endorsement is via our Constitution which refers to all members agreeing to abide by our EMEA Membership Charter of Principles
The UNCRPD can be found here.
Human rights are an important part of EMEA’s work.
Human rights violations can negatively impact Myalgic Encephalomyelitis and the lives of people living with the disease and its disabilities.
The European ME Alliance’s work is underlined and guided by the UN Convention on the Rights of Persons with Disabilities (UN CRPD) which states that people with disabilities, including people with physical disabilities due to illness must fully enjoy their human rights.
EMEA will work together with the European Disability Forum to monitor the implementation of the UN CRPD by the EU, to make sure European policies reflect and respect the obligations which the EU signed up to when it ratified the Convention in 2010 and the recommendations it received from the UN Committee on the Rights of Persons with Disabilities in September 2015.
- UN CRPD (https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html
- Optional Protocol: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/optional-protocol-to-the-convention-on-the-rights-of-persons-with-disabilities.html) and
- The European Disability Forum (http://www.edf-feph.org/)
The members of the European ME Alliance are keen to obtain support from all organisations supporting the principles mentioned above.
Membership is open to European organisations sharing the same objectives as EMEA and agreeing to the EMEA constitution.
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No medical recommendations are given or implied.
Please consult your own medical practitioner for the treatment of your personal symptoms.