EMEA News Q2 2026
EMEA – An Updated Constitution, New Members and an EMEA PPI
EMEA – An Updated Constitution and New Members
At EMEA’s recent Annual General Meeting our constitution underwent some revisions and new members were introduced to the Alliance.
EMEA introduced a change that now allows non-European groups to become Associate members of EMEA - thus allowing us to partner with other natonal organisations across the world to improve the future for people with ME and their families.
This unanimous decision marks a new phase in promoting a coordinated strategy of biomedical research into ME anddevelopment of treatments for the disease.
New Member, New Country in EMEA - ME/CFS Bulgaria
We are pleased to welcome МЕ/СХУ България - ME/CFS Bulgaria of Bulgaria as new colleagues in EMEA.
"We raise awareness of Myalgic Encephalomyelitis, support sufferers, and fund research in Bulgaria."
More about МЕ/СХУ България can be found here.
New Associate Member - CFS/ME Associazione Italiana
We are pleased to welcome CFS/ME Associazione Italiana of Italy as new colleagues in EMEA.
The CFS/ME Associazione Italiana has formally joined the European ME Alliance (EMEA) as an associate member.
This membership allows the Italian association to align its work with the wider European patient
community, ensuring a more coordinated approach to advocacy and representation for Italian patients.
By joining the alliance, the organisation will be able to cooperate with EMEA on joint issues and shared projects,
such as improving awareness and
supporting
international research initiatives. This collaboration aims to provide a more unified approach to addressing
diagnostic standards and treatment
access for those affected by ME/CFS throughout Europe.
More about CFS /ME Associazione Italianacan be found here.
New Associate Member from Sri Lanka/South Asia
We are pleased to welcome Sahana South Asia as new colleagues in EMEA.
Sahana South Asia has formally joined the European ME Alliance (EMEA) as an associate member, becoming the first
organisation from outside Europe to do so. This follows a recent change in EMEA’s policy regarding membership,
which now allows for broader international participation.
This new membership enables Sahana South Asia to collaborate with EMEA on global issues and joint projects, fostering a
more connected approach to research and advocacy.
By opening its doors to international members,
EMEA aims to facilitate better cooperation across borders to address the challenges faced by the ME community worldwide.
The EMEA page on Sahana South Asia is herecan be found here.
EMEA is Establishing New Patient and Public Involvement (PPI) Group
The European ME Alliance (EMEA) has established a new Patient and Public Involvement (PPI) group to enhance collaboration within the research community. This initiative is designed to support joint projects, particularly those involving the European ME Research Group (EMERG). By creating a formal platform for cooperation, the group brings together patients, experienced researchers, and clinicians, while also providing a dedicated space for early-career researchers (ECRs). This integrated approach ensures that the patient perspective is central to the development of research studies, fostering a more effective partnership between those living with ME and the professionals working to understand the condition.
More details will be given over the next months. .
Last Update: April 2026