Association ME/CFS Switzerland

Association ME/CFS Switzerland is a non-profit organisation committed to improving the lives of people affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

The association works to raise awareness among patients, families, the general public, and healthcare professionals, while advocating for official recognition of ME/CFS within Switzerland. A central part of its mission is to strengthen medical, nursing, and social care structures so that people living with ME/CFS have access to meaningful diagnostics, appropriate therapies, and essential support services.

At the same time, the organisation aims to build a strong advisory and support network for everyone affected — ensuring that no one faces ME/CFS alone.

Focus Areas

• Advocacy for patient rights and official recognition of ME/CFS
• Support for patients and families
• Public and professional awareness campaigns
• Information dissemination and education
• Political advocacy and collaboration with other patient organisations

Through these activities, the association works to create systemic change while offering practical support on the ground.

Working Together at European Level

As a member of the European ME Alliance, Association ME/CFS Switzerland contributes to collective European advocacy. This includes collaboration on shared policy goals, information exchange, and participation in joint initiatives aimed at strengthening recognition, research, and patient representation across Europe.

Key Achievements & Recent Initiatives

Recent work includes:

• Organisation of group meetings and lectures in several Swiss cities
• Public awareness campaigns to increase understanding of ME/CFS
• Regular newsletters for members and interested stakeholders
• Publication of up-to-date information on ME/CFS via the association’s website
• Ongoing political advocacy and cooperation with other patient organisations
• Support for the 18 September 2025 Parliamentary decision to develop a national strategy for ME/CFS and Long COVID.

These initiatives strengthen both community connection and national visibility.

Support for Patients & Families

Association ME/CFS Switzerland provides:

• A counselling hotline for members
• Advice and support via email for affected individuals and interested parties
• Group meetings offering peer connection and shared experience
• Informational resources and regular updates through newsletters and the website
• work with a private nursing company who is specialized in ME/CFS and Long Covid

The organisation offers both practical guidance and a supportive community network.

Support for Healthcare Professionals

To improve professional awareness and understanding, the association:

• Conducts awareness-raising activities aimed at physicians
• Organises lectures on ME/CFS

By promoting up-to-date knowledge, the association seeks to improve diagnostic accuracy and standards of care across Switzerland.